Blue Cathy

As this election season kicks into high gear it’s been interesting to see Miss Cathy engaging in the process.

It goes without saying that this lady is gaga for President Obama. She may not always remember what day it is but she remembers the date that the president was inaugurated.

Miss Cathy was the first person I called back on 2008 when our first African-American President was declared. I remember her sounding the happiest I’d heard in a long time, she was (almost) speechless, unusual for her l know, but her joy was that strong.

I can’t imagine how she felt, being someone that had grown up in the Jim Crow South, seeing what she never dared dream possible-at least not in her lifetime.

She was part of a generation of African-Americans who had migrated from the Deep South northward hoping for a better life for themselves and their families, most of whom were largely successful in their endeavors, living their ‘American Dream’ in shades of black and brown, free of the ‘whites only’ reality of their upbringing.

Miss Cathy wasn’t the first in her family to leave home but she was the only one to graduate high school, with no encouragement from her family. It’s not that they didn’t care-they just didn’t understand that education meant opportunity but she did, and she knew hers was somewhere outside of the city limits of Henderson, North Carolina.

She would go on to have a successful career as a correspondence clerk for the Veterans Administration in Washington DC, where she developed a lifelong love of the military and supporting veterans and their families for their sacrifice.   

While I knew most of this about her, she told me alot more about her life experiences while we watched the DNC Convention together on TV.

What I didn’t know until I joined her life was how political she is, come to think of it, she hasn’t missed casting a ballot since her diagnosis.

She’s a pretty outspoken voting rights advocate; especially at the local level, she has little patience for people that complain about government but then don’t vote (guess the tree can fall near the apple, too).

She feels that voting is almost a sacred duty, keenly aware of all those that have passed so that she could exercise her constitutional right. And she rails against those (especially minorities) who do not vote; she has one word for them-‘stupid’.

Since the conventions we’ve been talking politics, past and present, sometime deep into the night. Talking with her is an interesting contrast to the shades of grey the candidates are drawing between the class distinctions in our country, redistribution of wealth, race and the role of government in helping people better themselves as well as those who have worked their entire lives helping themselves to their (in my opinion) well deserved social security…….Miss Cathy wasn’t drawn that way-it’s who she is.

The debates are just around the corner. I’m looking forward to watching them with her and hearing her take on the candidate’s views.

I’m sure her commentary will be funny, insightful and as unique as she is, running the gamut from blue to red-beyond just primary colors.

Funny Lady

I picked up Miss Cathy the other day from the beauty salon where I’d dropped her off earlier to get her ‘do did’. She started nattering on the minute the back door was opened for her (as usual) and was in the middle of a story before she had her seatbelt on.

She was telling me that the beautician who curled and styled her hair was giggling and laughing at practically everything she said and I could hear that it bothered her.

It didn’t bother her that not long after sitting in the chair the young woman asked if she could call her, ‘Mom’.

For some reason Miss Cathy seems to attract a lot of ‘children’. She’s like the Pied Piper with a cane, beguiling the young and the not so young (she actually had a neighbor-who is past sixty-ask if he could call her ‘mom’).

Somehow, the ‘mom’ moniker applied even before she became a little old, round, affectionate person whose large bosom would cradle many a head.

And when I say ‘mom’, I’m not talking about the way her neurologist addresses her during their meetings, he’s from another part of the world and I’m sure it’s used as a sign of respect like “sir’ or ‘madam’ (but, frankly I think it’s a sign of laziness and a way to avoid knowing his patient’s name….but I digress).

Even when I was young (which meant Miss Cathy’s bosom was that much younger) I can remember my friends calling her “Mom” or “Miss Cathy” (the affectionate nickname she became known by that stuck), which pretty much means the same thing (without taking anything away for the person’s birth parent).

But, back to the here and now…..

I looked at her face, framed by soft waves of salt and pepper hair, in the rear view mirror as I was driving, listening to her and I could see that she was perplexed by her new daughter’s laughter, and that she was wondering whether or not she was being laughed at.

She said she didn't think she was being funny.

I didn’t need to know the specifics, not that that stopped her from telling me every-word-that-was-spoken (she’s not only ‘Miss’ Cathy, she’s a ‘Chatty’ Cathy, too). I knew from experience what had happened.

I told her it’s the way that she talks openly, honestly and colorfully about things that people find funny, that Miss Cathy’s candor is refreshing to most people.

I can see that they are charmed by her insights and surprised by the occasional vulgarity that is quite frankly-funny (her filter, which at best was minimal, is pretty much gone now after her diagnosis).

I told her that it’s her delivery about everyday observations and her opinions of the subject matter, not the content that people find amusing.

In another life (with her timing and flair for the dramatic) she would have been a damn good actress.

I told her that she should take the laugher as a compliment, that not everybody is funny, and that there’s a difference between being laughed with (which in my opinion is a sign of intelligence) and being laughed at which we all know (unfortunately) is a sign of the opposite.

She thought about I was said, seemed satisfied with the analysis and as she futzed with her hair (re-styling the styling) then replied, “Oh, I never thought about it like that, I like that much better. That’s good because with all that laughing I was about to get ticked off!”

Do I look fat in this life?

There are a lot of things that go into being a caregiver; some you know (and are prepared for) and there are other things you learn as you go.

I’ve found a lot of support these past two years from Alz.org, chat rooms and support group meetings but one thing that surprised me about this experience that seems to be overlooked and never really talked about (at least not to me) is the tendency for the caregiver to get FAT.

I look around at a lot of the caregivers that I’ve met and I see a lot of lard asses-mine especially. As Whoopi Goldberg quipped, “Once I thought someone was sneaking up behind me and when I turned to look I realized it was my own ass.”

I bring this up not to say that this happens all the time to everyone in my situation. No, there are a lot of caregivers who have been able to balance the enormity of their new roles without becoming enormous themselves.

But it did get me to thinking about the connection between the stress we’re under and obesity.

We all know that obesity is rampant in our society; poor diets and lack of exercise being two (obvious) reasons but stress has been linked as a contributing factor as well. For me, and I’m only talking about my own tonnage here, I found that there was so much to do in the beginning and so much change occurring that once I had my routines set up for my loved one and I had a chance to catch my breathe and focus on myself what I saw surprised me.

How did this happen and when did I let myself go?

I began to wonder, like the “freshman fifteen” that some young people gain during there first year of college; due to the change in environment, the stress and the anxiety of being on their own for the first time, is there a similar correlation for caregivers as we transition into a new environment, as well as the stress and anxiety of “Not” being on our own for the first time as well?

If freshman can be forgiven for their “fifteen”, is it possible for me to get a little understanding for my “Alzheimer’s eight” or the “Dementia dozen”?

Believe me, I take full responsibility for my rotund-ti-ty, as my role as caregiver has expanded so has my waistline. And while I never had Paul Ryan’s abs (and thankfully I never had his views on restricting women's reproductive rights either) I would like to see my feet again some day.

It’s nobody’s fault but my own and intellectually I know what needs to be done to return to my former svelte self-eat less and exercise. But, that’s easier said than done when you’ve stressed, often lonely and lack the motivation to give yourself the time and energy you’ve poured into your charge.

It’s not that I’ve been “so” selfless, I’ve just been too tired to care and being out of my own environment and routines I’ve found that I’ve developed some really bad habits-namely eating too much of the wrong food and not moving my body any more than is necessary.

The reality is that at the end of a day running around looking after someone else the last thing I want to do is run for myself.

I used to go to the gym, walk (I’m a former four mile a day runner but I blew my knees out years ago and switched to walking long distances instead) and maintained a rigorous stretching and exercise routine.

I ate a healthy, varied diet of vegetables, fruits, chicken, fish, some red meat and low fat or sugar free desserts. It was satisfying, I didn’t feel deprived and it gave me the energy I needed to fuel my life.

Unfortunately, it seem that these days I’ve pretty much abandoned anything that’s healthy for whatever is quick and easy (which mean it’s usually something frozen, processed and full of sugar and/or sodium). And I greedily grab for any and everything that can give me a moment’s comfort or (faux) sense of relief from my daily life’s stresses (read: junk food and sweets).

This is a classic case of emotional eating and sublimation.

Think of it this way, while the anorexic or bulimic denies themselves food or regurgitate as a way to control one aspect of a life off-kilter, (maybe) my eating and sloth like existence is my way of “not” having to be in control when I have to be responsible for someone else all the time-for the first time.

Hmmmm, maybe I’m onto something here….but, like the person who tries to commit suicide-you’re trying to kill the wrong person….so, maybe I’m force-feeding the wrong person, too (metaphorically).

No, I’m not saying I should be strapping Miss Cathy to her bed and feeding her color coordinated food nonstop till she fattens up like a piece of veal (not to say that she’s not doing a pretty good of that all on here own)…but I digress.

No, what I think my “light bulb” moment is telling me is that what I’ve been doing by engaging in behavior that I know is bad (and bad for me) is that I’m punishing myself instead of expressing the anger I feel toward my charge and the difficult situation I find myself in but was unprepared for emotionally (unknowingly).

So, I turn to food (that tasty panacea) and inertia; depression, denial and frustration all seem to more palatable when you’re prostrate with a plate.

Great, now that I’ve acknowledged the obvious I hope it’ll help when the cookies are calling me at midnight when I decide to stay up and watch “Shoah”.

While I seriously doubt that anything will change overnight with this revelation I do know that the first step to solving a problem is acknowledging it. I didn’t exactly work up a sweat thinking this through but I do think it was an exercise worth pursuing.

Who knows, now that the mind has been stimulated maybe I’ll surprise myself next by moving my body…….even if it’s just to push back from the table.

Green peas and squash

“ I’ve never had green eggs and ham, no, but I have had green peas and squash; a dish that’s green, surprisingly delish and too bright to miss.

Green peas and squash are not harsh, even if served on a marsh and they doesn’t smell like someone’s arse.

So, if you’re on a plane, or in a train or playing tennis on a court in the rain, eat your green peas and squash-they may look odd but they’re good for your bod. ”

Okay….Dr Seuss I’m not but believe me, you’d start rhyming too if you saw what I see in the kitchen on a regular basis.

I’m the first to admit that when I saw the concoction on the kitchen counter I thought to myself, “Oh well, the old girl’s done it this time.” There lay a large bowl brimming with what looked like something left over from an oil spill.

Out of curiosity I picked at it with a fork, further mixing the peas with the dices of squash, the onion and bits of garlic. It looked a little funny but then again, so do I and I wouldn’t want anybody to hold that against me so in the spirit of solidarity I tasted it and surprise, surprise-it was actually very good.

I wasn’t “that” surprised because Miss Cathy has come up with some cockamamie dishes in the past but she succeeds more than she fails. And God bless her; unlike Paula Dean, Rocco or any of the other chefs on the Food Network, she’s never been concerned about the visual.

Since I’ve lived here she’s come up with some of the worst and best dishes I’ve ever eaten. When presented with one of her dishes I’ve found it best not to look but to just take a leap of faith and taste.

I don’t really remember her cooking like this when I was a kid growing up; it was all very “meat and potatoes”, stick to your ribs kinda stuff.

Her “Eh, why not” attitude seemed to have started late in life, now it’s all a dash of  “what was she thinking?” and a pinch of “Oh no she did-int”. Whether it has anything to do with the dementia I doubt but I don’t believe in coincidences either.

And her best rationale for the combo of green peas and squash (which she thinks is a no-brainier) is, “they’re both vegetable’s aren’t they?”

Her philosophy is that “it's all going to the same place anyway”.…. enough said-now back to eating your color coordinated food.

As good as it gets

I’m back less than a week from my last trip teaching in New York and I can see that the time apart has done both Miss Cathy and me a lot of good. Peace and harmony seems to have replaced the tension and resentments that just a few months ago permeated the space we share.

Last year was the first time I filled in for a friend teaching a summer fashion illustration course from mid July to early August. It was an experiment to see how Miss Cathy could get along without me for up to four days (with Tony talking over as primary caregiver in my absence) and Ron (our upstairs neighbor that Miss Cathy considers a third son) to help out, too.

All went well so I could confidently accept the position again when they offered it to me this year.

While I was in New York teaching I had time to write, relax, see friends and just forget all about what my life has become and focus on what it is-which ain't so bad.

My absence was a nice change for Miss Cathy too. Not only did she get to spend time with her other sons, her girl-friends came to visit more often and I’m sure she liked having here condo all to herself (more or less) while I was away.

Since I’ve been back I have noticed a few things worth mentioning. She’s been initiating projects around the condo then just walking away from them or forgetting that she even started them. And then there are those times when I remind her that something was her idea and I see from the expression on her face that she had no clue. Those moments are tough and her refrain, “Oh, I’m just as crazy as shit” is pretty much a guaranteed reaction.

I deduced a while ago that she gets more forgetful and “nonsense-ical” (my term for those times when “what” she says has absolutely nothing to do with the situation or conversation) when she’s upset, excited, stressed or anxious.

Lately though her memory seems to come into question even on those days when she’s otherwise pretty sharp.

It’s in those moments when she forgets that I remember to stay calm and loving. I gently try to give her what she needs; be it a reminder of the word she’s hunting for, patience as she searches for it, help solving the puzzle that her mind can become or simply sitting with her while she ruminates.

This month is the two-year marker of my “leaving my life to join hers’”. I’m slowly starting to accept where I am and who I am in this moment. I don’t know if it’s time, attrition or surrender that is the reason for my newfound state of resignation.

Whatever the reason, it is good to wake up and not have that sinking feeling come over me that I’m trapped in a nightmare (of my own choosing). It’s far from ideal but it’s not what it was before, or what it’s likely to be in the future….for today, it’s enough to know that this may be “as good as it gets”.

The UPS man (should) always ring twice

I came back to Miss Cathy’s the other day after running errands to see a notice that UPS had tried to deliver a package. As I pulled the “ups-it” off the door I saw that the “No answer” box had been checked. I had been expecting the package (a pair of cargo shorts from Macys online-nothing work related or that couldn’t keep but “I wants wat I wants”). I was as disappointed as a kid on Christmas morning that gets socks instead of an Xbox.

My options for re-delivery were to reschedule (and wait) or pick the package up myself-not exactly Sophie’s choice but still….

I was pissed because I knew mom had been home when the UPS man came so there was no reason that the package shouldn’t have been there waiting for me. I sulked into my room-childish I know but hey, apparently there’s not much going on right now in my life if a delivery from Macys is what makes my day.

I realized I was being silly and was prepared to let the whole thing drop until later that day when Miss Cathy said something that annoyed me (quelle suprize) so (petty Mr. Pettington that I am) I brought up UPS. Without missing a beat she sidestepped any responsibility for the missed delivery like Wonder Woman deflecting bullets with her magic bracelets.

“I didn’t hear anybody knock,” she said dismissively, ”You know they just tap, tap, tap on the door anyway.”

Funny, I thought to myself, it’s awfully curious that she couldn’t hear the UPS man knocking on the door in the middle of the day when old eagle ears could hear me parking my car, walking up the steps and pulling out my keys when I come home late at night (and she’d been fast asleep).

I found it interesting that she was pleading Helen Keller when the last time this happened she had a completely different rationale. Back then she’d taken the position that she wouldn’t go near the door if she weren’t expecting someone. I tried to tell her that a robber or murderer wouldn’t be so polite as to knock so chances are whoever was on the other side was harmless-or a Jehovah’s Witness.

Besides, the door is made of solid steel with a New York worthy Medeco lock so she was well protected as long as she didn’t open it.

I was annoyed about the whole thing but it’s not like I kicked the cat (and before you forward this post to the ASPCA I’m just joking and a) we don’t have a cat and 2) I’m still grieving the death of my 18 year best friend, Missy the cat.

I went about my day and later decided to call UPS to negotiate how/when/where I could pick up my package without having to wait another day (heaven for fend I deny the world the sight of my skinny calves).

Soon after I got off my cell Miss Cathy came to my door. “I have something I need to talk to you about” she said (Never a good opener where she’s concerned-right up there with the infamous relationship killer “We need to talk”).

“You know this wouldn’t have happened if you would have bought that doorbell like I asked you, too.”

So, now it was MY fault-touché, the best defensive is a strong offense (no matter how offensive).

“I can get it myself if it’s too much for you to do,” she said, meaning the doorbell-not the package. “I’ve asked you time and time again and you just ignored me and I know you heard me” Clearly, she was on a roll, “And I didn’t appreciate when you said, “you don’t need one-no one comes to visit you anyway”.

Why….I was stunned. First of all I didn’t know what had set her off since I wasn’t…even…talking…to…her and “bee” I don’t remember saying anything as catty (or mean) as “no one comes to visit you anyway” (not out loud at least…I mean, it did sound like something I would say).

Honestly, I don’t remember if I said it or not but that wasn't the point. She went off and I went to my happy place. I agreed to buy a new doorbell “soon” and got the hell out as soon as was politely possible.

My trip to the UPS customer center was like being at the DMV; the line was long and the workers at the counter were surly and lethargic. An hour later I had my fashion in hand and headed back knowing that I was going to be getting several more deliveries in the days ahead (what can I say…online shopping is my new addiction).

The next day I put a post-it of my own on the door that read, “UPS: Please Knock loud and Knock twice, Elderly inside, Thank you”